#7

Tuesday was chemo #7 and it was our busiest day yet.

We started at 9:15 headed to CHLA, we checked in at imaging at 11:30 for her ultrasound.  They scanned from 12 to 1 and then we ran for a quick lunch there at the hospital.  She had been npo since the night before and she was hunnnngry.  At 1:30 we checked in at outpatient Tower 5 for chemo.  Our dressing change was the BEST ever such a relief.  We were a bit nervous about the ultrasound as the tech that did the scan, left, talked to the radiologist, came back and scanned some more.  Fine.  Needless to say that was worrisome after our last ultrasound that started it all.  So we did the dressing change and waited for Dr. Tran.  The first words out of his mouth as he walked in the door were, "So the ultrasound looks great".  ?!?!  I wanted to choke that tech and hope that she gets horrendous wrinkles from all the scowling she was doing at Macie's right side.  Curse her.

Anywho, Yay, it looked great.

So after that we talked about increasing her gabapentin and he agreed.  He was very happy with her ability to walk and paddle her feet, no problems there.

He did mention that from the chest x-ray we did the Tuesday before it was apparent that her picc is moving.  Still functional, still in a good spot, but from what he saw, it does look like it will need to be replaced before the end of treatment.  Fine.  If that's our "bad news" for the day, we will take it.

So after talking with Dr. Tran, we went back to the chemo center.  Our chemo was cooked so they first push the zofran, then saline, then vincristine, then flush, then dactinomycin, then saline, then the heparin flush and we were done.

Like a champ, she was out the door.

Panera dinner on the way home and a quick one toy stop at Target for her extreme bravery and smiling face were in order.  A grown adult would not remain so good natured during an 11 hour day, yet she did.  

I wish there was more we could do for her, she is unparalleled. 

Robbie stayed home to take the older girls to their first t ball practice, so I was accompanied by a true chemo professional : My Dad.   My Dad has been a part of the "Chemo Pal" program in Portland for many years.  It is a program where he gets paired with a young kid who has chemo and he shows up with an ipad and toys and books and he is "Mr. Fun" or "Mr. Snuggle" or "Mr. Wagon-puller".  He is whatever that particular kid needs and he is there each time they have chemo through the duration of their treatment.  What a blessing that has been for Rob and I that he has the background that we do not.  We are thankful.

This  picture was taken at Panera on our way home.  We were at about a 10 hour day on the move at this point.....still smiling.

Waiting on Outpatient 5

The awesome ninja tower Macie built while waiting in Imaging for her ultrasound.

We call this outfit business casual.  She is SO DANG CUTE.